I know I don't need to explain myself for being away from EverythingUnscripted.net for a while, but a quick update note wouldn't hurt (and also...I'm not sure when I'll post something new here). Besides, at current, my public website doesn't need to get the earful that my private journal does.
Here's the deal: remission treatment for Chronic Lyme Disease isn't easy. My doc said we'd try the "balls to the wall" approach this time...
...If I had man parts, they'd feel beat up and deflated.
Treatment is working, but I'm so over the medical regimen (which is necessary), physical/emotional pain and yeah even malaise. However, if I quit treatment, all progress will be undone. Therefore, I will keep moving forward. My Father in Heaven isn't finished with me yet. This is something that everyone with Lyme [and/or some other malady(ies)] deals with. To those who are having a tough time of it, too...I empathize with you.
Love and hugs.
There’s a reason why Chronic Lyme Disease is called Chronic Lyme Disease. Approximately 20% of Chronic Lyme Disease patients slip out of remission. :-(
Last year, despite showing so much promise and improvement, some of the old pre-Lyme issues returned (original diagnosis = 2015). In 2020, the world became more of a chaotic mess with COVID-19, political insanity as well as injustices, inequalities and tragedies across the board. So, stress and the fun that comes with it is normal…right? Right.
But the issues continued. And they got worse…like 0-to-60-down-a-deep-vortex type of worse. Hiding my issues worked. Until it didn’t. I had to get real and face facts. Lyme had returned. I knew it.
My response: &(*&)(*&^%^$#@%&**(&*%$#!@%%%&^*!!!!! (That's a summary)
What was the largest diagnostic tell? Enlarged liver and spleen, of which I have both. And now every little rumble from my left or right side sends my anxiety through the roof. Out of remission. Officially. Yep, Chronic Lyme Disease has returned like a terrible movie sequel, bringing with it unwanted "houseguest" Babesiosis (Babesia). Babesia is a commonly occurring (and re-occurring) Lyme co-infection.
Prescribed treatment? Aggressive. It will last as long as it takes. Treatment starts TOMORROW. And, God willing, may the odds be ever in my favor!!
So here I sit. 10:30-ish on a Saturday evening. A time when I’d ordinarily be competitively gaming, chatting it up with friends or chilling with a fun show. Instead I find myself typing this news to you from my corner office (the corner of my bedroom, that is).
I’m walking a very fine line between Faith and Fear. In my heart, I know and feel that God is on my side. He will take care of me and provide me with what I need. Here's where the line gets trippy... I remember the agony of all this before. Imagine sitting through a long 3-D movie preview of hell. An interactive preview. Gremlins poke and prod you until you cry, scream or throw up. Your heart and brain are tortured over and over again. Then there’s that clever dark angel who courts you, keeping you awake at all hours. That's just in the first few weeks.
I don’t want to re-live this again. Not when I’m just getting my life back together. But I have to. I have to because I choose life over death. And with all the strength and comfort God provides, I will survive. Even though I will struggle.
Would you believe that I feel guilty talking about my feelings here? There are so many other people suffering in this world. People who may have it worse and/or may not have the blessings that I have. Loving family and friends. Housing. Plenty of food. Access to medical care. Not a lot of money, but just enough to survive. And so much more. It would probably help if I remembered these things more often. One cannot thrive in darkness. One must live in the light.
Just a little scared right now...
Faithful readers, thank you for hanging in there and supporting me all these years. Love and hugs!!
While browsing through Facebook, I stumbled upon some excellent life saving advice. Sure, sure...if it's on Facebook then it MUST be true. *eyeroll* Whatevah. This advice, however, is pretty rock solid. We live in a time of continual stress, pressure, anxiety, etc. (Say no more about that. It's like preaching to the choir, right?) Many of us are in the risk category for heart attacks and may or may not be aware of it--this also includes "younger people" (I feel old saying that). COVID-19 and all the other, well, crap floating around, don't help matters much, do they?
I'm not a doctor so if you want to ask your doctor first, then I recommend doing so. However, it does look pretty on par with first aid and life saving tips.
You never know when advice like this could save yourself, a friend, family member or stranger!
How to Survive a Heart Attack if You're Alone
Tell as many other people as possible about this. It could save their lives!!
Love you all!! 🤍🤎💜💚💙🧡💛🖤❤️
Sorry I've been away, guys. Just feeling so blasted exhausted these days; between trying to cope with everything that is happening in/to our Nation and our World, trying to remain calm while dealing with some rather serious Lyme-related complications and well...everything else...! You understand. Perhaps you even empathize...
...empathy is priceless. We all need that.
One day at a time, one step at a time... Prayers for you all. Prayers for our Nation, our World. Stay well, stay safe!
#Healing #Hope #Peace #Wisdom #Courage #Strength #Empathy #Love
This post was originally added to this website on 3 March 2020. This is the fourth update to the original notification. Make good choices...if not for yourself, then for others. Be safe. Be well.
For current information on COVID-19, please visit the Center for Disease Control's Coronavirus (Covid-19) page HERE and the World Health Organization's (WHO) Coronavirus page HERE.
I am not a medical professional, therefore, information in this post is provided from trusted medical resources to help provide clarity...and some of it is common sense. There is also much more information out there. These are just some basics to help. As always, should you have any questions or concerns, you should first direct them to your physician or applicable medical professional via phone.
Current Common Signs of Infection
NOTE: Do not assume that you and those around you are well. Some of those with COVID-19 do not have a fever (common symptom). Others with COVID-19 can be asymptomatic, i.e., infected without symptoms and/or pre-symptomatic, i.e., able to spread infection without realizing they're sick.
In severe cases, infection can cause pneumonia, severe acute respiratory syndrome, kidney failure, heart complications, central nervous system complications and even death.
Many Preventative Recommendations
If you already have a confirmed case of COVID-19, the following may help to reduce your chance of spreading the disease to others:
Some Resources to FIND Help (most provided by MoveOn.org)
Some Resources to OFFER Help (provided by MoveOn.org)
A Video for Those With Lyme Disease (and basically anyone who is immunocompromised)
This video details a long-deserving WIN. It is hope for a successful leap forward in both the professional and personal Lyme Community! I'm so proud of my doctor and all that he and his team do for myself, my family and all additional lives that they touch.
Greetings from the desk of Jen the Zombie!
I have happy news to report! Last week I was given the Golden Ticket of news that all Lyme patients want to hear. I can now enter the hypothetical Chocolate Factory of Remission (for you youngsters, that’s a “Charlie and the Chocolate Factory” reference). Yaaaay!
So what does “remission” mean? Well, it means that Chronic Lyme Disease and its co-infections Babesia and Bartonella are now suppressed. It also means I’d better take care of myself and keep my immunity up because I can’t waste God’s answer to endless prayers of healing.
To view the entire testimony, please continue reading here.