What can you do to raise awareness? Here are a few of the many ways you can make a difference: Get up to speed on the current information on Lyme. This can involve watching video resources such as Under Our Skin and/or exploring credible articles and websites. The Global Lyme Alliance, LymeDisease.org and ILADS websites are excellent places to start.
Put up a Lyme Awareness poster at your church, local business and/or community center. Have a nurse or experienced advocate give a presentation to your church, local business and/or community center. Start or help with fundraising initiatives and activities. A few examples...Lyme-themed social gatherings, crowdfunding efforts and run/walk-a-thons. Wear a lime green ribbon, bracelet, t-shirt, and the like. Those little efforts can bridge Lyme-related awareness opportunities, such as on-the-spot communication and/or comfort to those who are curious about or who have Lyme Disease. Know your environment and keep it clean. The outdoors, in particular. Hiking, fishing, soccer games, camping, gardening, yardwork, going to the beach are good examples. I hate to say it, but concrete truly is your friend if you're trying to avoid the bite of all bites from a tick. Understand that your pets can be carriers. Ticks love to latch onto them and then drop off in one's residence (that's how I got at least one tick bite). Understand that there is more than one way to contract Lyme Disease. Ticks are obvious. But did you know that they don't travel just via deer? As mentioned, your beloved pets. Deer. Birds. Rodents of all kinds. Lyme disease can be found in mosquitos. It can be passed from mother to child. It can pass from partner to partner. Organ transplants and blood donations can also be tainted with Lyme Disease, which is one reason why those who know they have Lyme Disease are discouraged from donating blood or organs. Get a Lyme Literate doctor if you don't already have one...SO IMPORTANT! I'd be dead by now if I hadn't. Be a good friend. Be a solid mentor. Be a patient and loving caregiver. Be a good advocate. In your community or larger scale, i.e., reaching out on a Federal Government level. Petitions can be made to the White House. Your Senators and Congresspeople can be contacted. Fight for positive change and awareness of this epidemic disease. The opportunities are endless!
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![]() There’s a reason why Chronic Lyme Disease is called Chronic Lyme Disease. Approximately 20% of Chronic Lyme Disease patients slip out of remission. :-( Last year, despite showing so much promise and improvement, some of the old pre-Lyme issues returned (original diagnosis = 2015). In 2020, the world became more of a chaotic mess with COVID-19, political insanity as well as injustices, inequalities and tragedies across the board. So, stress and the fun that comes with it is normal…right? Right. But the issues continued. And they got worse…like 0-to-60-down-a-deep-vortex type of worse. Hiding my issues worked. Until it didn’t. I had to get real and face facts. Lyme had returned. I knew it. I. Just. Knew. My response: &(*&)(*&^%^$#@%&**(&*%$#!@%%%&^*!!!!! (That's a summary) What was the largest diagnostic tell? Enlarged liver and spleen, of which I have both. And now every little rumble from my left or right side sends my anxiety through the roof. Out of remission. Officially. Yep, Chronic Lyme Disease has returned like a terrible movie sequel, bringing with it unwanted "houseguest" Babesiosis (Babesia). Babesia is a commonly occurring (and re-occurring) Lyme co-infection. Prescribed treatment? Aggressive. It will last as long as it takes. Treatment starts TOMORROW. And, God willing, may the odds be ever in my favor!! So here I sit. 10:30-ish on a Saturday evening. A time when I’d ordinarily be competitively gaming, chatting it up with friends or chilling with a fun show. Instead I find myself typing this news to you from my corner office (the corner of my bedroom, that is). I’m walking a very fine line between Faith and Fear. In my heart, I know and feel that God is on my side. He will take care of me and provide me with what I need. Here's where the line gets trippy... I remember the agony of all this before. Imagine sitting through a long 3-D movie preview of hell. An interactive preview. Gremlins poke and prod you until you cry, scream or throw up. Your heart and brain are tortured over and over again. Then there’s that clever dark angel who courts you, keeping you awake at all hours. That's just in the first few weeks. I don’t want to re-live this again. Not when I’m just getting my life back together. But I have to. I have to because I choose life over death. And with all the strength and comfort God provides, I will survive. Even though I will struggle. Would you believe that I feel guilty talking about my feelings here? There are so many other people suffering in this world. People who may have it worse and/or may not have the blessings that I have. Loving family and friends. Housing. Plenty of food. Access to medical care. Not a lot of money, but just enough to survive. And so much more. It would probably help if I remembered these things more often. One cannot thrive in darkness. One must live in the light. Just a little scared right now... Faithful readers, thank you for hanging in there and supporting me all these years. Love and hugs!! Jen Sorry I've been away, guys. Just feeling so blasted exhausted these days; between trying to cope with everything that is happening in/to our Nation and our World, trying to remain calm while dealing with some rather serious Lyme-related complications and well...everything else...! You understand. Perhaps you even empathize...
...empathy is priceless. We all need that. One day at a time, one step at a time... Prayers for you all. Prayers for our Nation, our World. Stay well, stay safe! #Healing #Hope #Peace #Wisdom #Courage #Strength #Empathy #Love This post was originally added to this website on 3 March 2020. This is the fourth update to the original notification. Make good choices...if not for yourself, then for others. Be safe. Be well. For current information on COVID-19, please visit the Center for Disease Control's Coronavirus (Covid-19) page HERE and the World Health Organization's (WHO) Coronavirus page HERE. I am not a medical professional, therefore, information in this post is provided from trusted medical resources to help provide clarity...and some of it is common sense. There is also much more information out there. These are just some basics to help. As always, should you have any questions or concerns, you should first direct them to your physician or applicable medical professional via phone. Current Common Signs of Infection
NOTE: Do not assume that you and those around you are well. Some of those with COVID-19 do not have a fever (common symptom). Others with COVID-19 can be asymptomatic, i.e., infected without symptoms and/or pre-symptomatic, i.e., able to spread infection without realizing they're sick. In severe cases, infection can cause pneumonia, severe acute respiratory syndrome, kidney failure, heart complications, central nervous system complications and even death. Many Preventative Recommendations
If you already have a confirmed case of COVID-19, the following may help to reduce your chance of spreading the disease to others:
Some Resources to FIND Help (most provided by MoveOn.org)
Some Resources to OFFER Help (provided by MoveOn.org)
A Video for Those With Lyme Disease (and basically anyone who is immunocompromised)This video details a long-deserving WIN. It is hope for a successful leap forward in both the professional and personal Lyme Community! I'm so proud of my doctor and all that he and his team do for myself, my family and all additional lives that they touch. ![]() Chronic Lyme Disease. Can't say I'm completely grateful to have that. It benched me from the life I had (though I've got a much better life in store for me!). Lyme will always be in lurking around in my system like a Logic Bomb (malware). Even when healed from the worst of it, Chronic Lyme Disease lays dormant waiting for the immune system to flip out. But this particular entry isn't a 101 snippet. Rather, it's related to my most recent post on appreciation. It's been a long long long road. Chronic Lyme Disease has some excellent right hooks and jabs, but throughout the process, I've become a better, stronger boxer and now thanks to God and JSC, I'm in Maintenance Phase (mild treatment) and not full blown treatment. I've started driving longer distances. Picked up a few random jobs here and there. Am slowly but surely getting back into shape. And yes, I'm still brainstorming ideas for my first book. Progress. With an upcoming appointment at JSC, I thought it might be cool to show my doc that I appreciate his continued work. It's a mixed media piece. A watercolor cut into uneven strips placed onto strong white paper. The brain was drawn on green checked paper...look closely and you'll see the meticulous pattern and black, green and gray pen work. Many ways to interpret. Lyme brain. The jail bars of brain fog. The white background of hope for a better future. It was fun to work on...hope Doctor J likes it. For the larger, more detailed version, please refer to the mixed media page. ![]() Greetings from the desk of Jen the Zombie! I have happy news to report! Last week I was given the Golden Ticket of news that all Lyme patients want to hear. I can now enter the hypothetical Chocolate Factory of Remission (for you youngsters, that’s a “Charlie and the Chocolate Factory” reference). Yaaaay! So what does “remission” mean? Well, it means that Chronic Lyme Disease and its co-infections Babesia and Bartonella are now suppressed. It also means I’d better take care of myself and keep my immunity up because I can’t waste God’s answer to endless prayers of healing. To view the entire testimony, please continue reading here. ![]() On the first day of Christmas, my true love sent to me a wicked case of Chronic Lyme. On the second day of Christmas, my true love sent me to two co-infections and a wicked case of Chronic Lyme. On the third day of Christmas, my true love sent to me three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the fourth day of Christmas, my true love sent to me four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the fifth day of Christmas, my true love sent to me five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the sixth day of Christmas, my true love sent to me six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the seventh day of Christmas, my true love sent to me seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the eighth day of Christmas, my true love sent to me eight cheerful friends I never thought I’d have, seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the ninth day of Christmas, my true love sent to me nine perfect days, eight cheerful friends I never thought I’d have, seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the tenth day of Christmas, my true love sent to me ten missed social gatherings, nine perfect days, eight cheerful friends I never thought I’d have, seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the eleventh day of Christmas, my true love sent to me eleven Netflix binges, ten missed social gatherings, nine perfect days, eight cheerful friends I never thought I’d have, seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. On the twelfth day of Christmas, my true love sent to me twelve expensive supplements, eleven Netflix binges, ten missed social gatherings, nine perfect days, eight cheerful friends I never thought I’d have, seven years of sleep-deprived nights, six IV treatments, five fun brain games books, four nasty uncoated Flagyl pills, three helpful doctors, two co-infections and a wicked case of Chronic Lyme. |
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April 2022
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